Participate

NAGENdata exists thanks to the consent of patients and participants and the commitment of the research community

The collective drive behind NAGENdata

Patients and participants, together with researchers and clinicians, come from diverse backgrounds but share a common goal: that the benefits of genomic medicine reach individuals, families, communities and society as a whole in a secure, rigorous and equitable way. NAGENdata converts anonymised data into knowledge and results in a reliable environment of responsible reuse.

In return, we acknowledge the right to decide on what use to give the data: informed and granular consent, transparent supervision, access control and traceability. The participation of patients and professionals improves the quality of decisions and the real impact of genomics on healthcare.

Making a lasting impact

Patients and participants who share their genomic and health information make it possible for us to find scientific answers today and create useful evidence for others under similar conditions in the future. At NAGENdata, these data are processed anonymously and viewed in secure environments, so that each datum contributes to the collective knowledge.

At the same time, researchers and clinicians use the ecosystem to raise relevant questions and transfer findings to healthcare practice when appropriate. With informed consent, traceability and security protection, we measure the real impact on people's lives. The 'NAGEN Programme' summarises the path that has brought us here and the basis on which NAGENdata grows.

Participate

Are you a researcher?

Create your profile on NAGENdata to access the platform. Once your profile is validated, you will be part of the research community.

Are you a patient?

Create your profile to consult information, update your preferences, and get in touch with the team.