What data does NAGENdata store?
Genomic data (e.g., WGS/exome) and anonymised clinical-phenotypic data from the NAGEN Programme, with harmonised catalogue and metadata.
Genomics at the service of people. NAGENdata connects research and healthcare system through secure environments and responsible reuse of anonymized data.
Genomic data (e.g., WGS/exome) and anonymised clinical-phenotypic data from the NAGEN Programme, with harmonised catalogue and metadata.
Research staff and, where appropriate, collaborating institutions. Access is made according to purpose, entitlement and terms of use.
Privacy by design, anonymisation, remote consultation, role-based permission control and output control; policy publishing and audit logging.
Access to secure analysis environments, curated datasets, documentation and technical/scientific support.
A view of aggregated indicators (e.g., population pyramid, geographical origin and by speciality) that does not allow to identify people.