NAGENdata

Genomics at the service of people. NAGENdata connects research and healthcare system through secure environments and responsible reuse of anonymized data.

Frequently asked questions

What data does NAGENdata store?

Genomic data (e.g., WGS/exome) and anonymised clinical-phenotypic data from the NAGEN Programme, with harmonised catalogue and metadata.

Who can request access?

Research staff and, where appropriate, collaborating institutions. Access is made according to purpose, entitlement and terms of use.

How is privacy protected?

Privacy by design, anonymisation, remote consultation, role-based permission control and output control; policy publishing and audit logging.

What tools will I have as a researcher?

Access to secure analysis environments, curated datasets, documentation and technical/scientific support.

What is the public data viewer?

A view of aggregated indicators (e.g., population pyramid, geographical origin and by speciality) that does not allow to identify people.